More About PXE
Find listings of medical journal articles on PXE, thorough clinical descriptions of PXE for the health care provider, and much more in PubMed, NCBI and GeneReviews.
Find many resources for low vision services, descriptions of current treatments for wet AMD, state low vision driving regulations and more.
Browse the sites for the American Academy of Dermatology and Journal Watch Dermatology.
Explore the basics of genetics, genetic counseling and testing, and what the Genetic Information Nondiscrimination Act (GINA) means to you.
PXE International is currently working with multiple organizations to help develop a clinical trial on PXE.
Disability and Patient Resources
Browse sites created for those with disabilities, particularly the Patient Advocate Foundation, and excellent resource. Read up on the Family and Medical Leave Act.
Browse through several websites covering a wide variety of health topics, including the Genetic Alliance website.