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About Us

2012 Annual Report


PXE International was founded in 1995 to promote research and support individuals affected by pseudoxanthoma elasticum (PXE).  We work on behalf of individuals and their families to improve quality of life through advancing research, educating clinicians and supporting individuals.

PXE International is the prime force in conducting basic and clinical research and providing financial support for applied translational research, product development, and treatment development for PXE. We steward the intellectual property to equitably advance products and services around the world for the individuals and families living with PXE.

Advocacy Groups as Research Organizations: The PXE International Example

To discover more about the origins of PXE International, read or listen to Sharon Terry's Health Affairs article, "Learning Genetics".

 

 


Mission


PXE International

  • initiates, funds and conducts research;
  • provides support for individuals and families affected by pseudoxanthoma elasticum; and
  • provides resources for healthcare professionals.
     

Funding


 

PXE International is a 501(c)(3) not-for-profit organization established in 1995. PXE International research began its funding through private donations. The seeds planted by these small donations have grown into grants from foundations, companies and the government. The success of our activities and our mission as a whole depends on the generosity of you, our supporters.  You can make a tax-deductible donation at any time.

 

Last modified: 03/21/2014