About Us

Overview

After their children were diagnosed with Pseudoxanthoma Elasticum (PXE) in 1994, Patrick and Sharon Terry founded PXE International to be an advocate organization and accelerate research. PXE International has the great opportunity to support individuals affected by PXE. The research we facilitate and the support we provide goes a long way toward allowing patients affected by this disease to lead normal, happy lives with the knowledge that we are working tirelessly on their behalf.

This website is intended as a resource for patients, medical professionals, and researchers.

2011 Annual Report

Advocacy Groups as Research Organizations: The PXE International Example

Read or listen to Sharon Terry's Health Affairs article, "Learning Genetics" to find out more about the origins of PXE International.
 

Mission

PXE International

• initiates, funds and conducts research;
• provides support for individuals and families affected by pseudoxanthoma elasticum; and
• provides resources for healthcare professionals.
  
  

Funding

PXE International is a 501(c)(3) not-for-profit organization established in 1995.  PXE International research began its funding through private donations. The seeds planted by these small donations have grown into grants from foundations, companies and the government. The success of our activities and our mission as a whole depends on the generosity of you, our supporters.  You can make a tax-deductible donation at any time.