Disability and Patient Resources Links

Patient Advocate Foundation
National non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability. Overview of Services 
 

Genentech Access to Care
Genentech, creator of the antiangiogenesis drugs Avastin and Lucentis, is committed to patients having access to their therapies.  Through the Genentech Access Solutions program, the company provides patients and healthcare providers with coverage and reimbursement support, patient assistance and informational resources.  Patient assistance support is for those eligible patients in the US who do not have insurance coverage or who cannot afford their out-of-pocket co-pay costs.
 

Genetic Information Nondiscrimination Act (GINA)
What is genetic information and why is it important?  What are GINA's health insurance protections? What are GINA's employment protections?  Find GINA materials for the public and healthcare providers.
 

statehealthfacts.org
A project of the Henry J. Kaiser Family Foundation, this site is a quick way to find free, up-to-date, and easy-to-use health data for all 50 states on more than 700 heath topics.

 

Family and Medical Leave Act
Addresses the Family and Medical Leave Act of 1993, including the text of the law, a synopsis of the law, sample forms for employees and employers, and a FAQ sheet for questions such as valid reasons for leave, notification responsibilities and employee rights and eligibility.
 

healthinsuranceinfo.net
The Georgetown University Health Policy Institute has written A Consusmer Guide for Getting and Keeping Health Insurance for each state and the District of Columbia – fifty-one in all. These Guides are updated periodically as changes in federal and state policy warrant. The Guides only summarize your protections, and so may not answer all of your questions. They are not a substitute for legal, accounting, or other professional advice.
 

DisabilityResources.org
Information and links for people with disabilities and their families, including information about books, magazines, newsletters, government agencies, nonprofit organizations, telephone hotlines and websites. Also provides a monthly newsletter.
 

Disability Law Handbook (also available in Spanish)
The Disability Law Handbook answers questions about the Americans with Disabilities Act (ADA), the ADA Amendments Act, the Rehabilitation Act, the Individuals with Disabilities Education Act, the Civil Rights of Institutionalized Persons Act, and the Fair Housing Act Amendments.