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Published monthly, the eNewsletter keeps you up to date on the latest happenings at PXE International: research highlights, event announcements, glimpses into PXEers' personal stories, new pages on the website, fundraising opportunities.

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Explore the eNewsletter archives: 2013 • 2012 • 2011 • 2010 • 2009 • 2008

March 11, 2014 [Volume 7, No. 2]
AREDS2 and eye vitamins: What it means for macular degeneration, and PXE

  • The AREDS2 trial: What it means for macular degeneration, and PXE
  • The DMV vs. France, by Jessica Harper
  • Social Gathering for New England PXEers May 31, 2014
  • PXE International to be part of the National Patient-Cenetered clinical Research Network through Genetic Alliance and PCORI
  • Genetics meets public health -
  • Andy Cremer shares his PXE story for Rare Disease Day 2014
  • To all PXE Magnesium Supplement Clinical Trial participants - Let your voice be heard!

Read the March 2014 eNewsletter.


January 31, 2014 [Volume 7, No. 1]
Thank you for your generous support!


Last modified: 03/28/2014