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Events


PXE International is extremely committed to patient and physician education and communication. We do this through our various events such as webinars, regional meetings, and biennial conferences. While these take a lot of time and money to prepare, PXE International believes them to be a vital part of our mechanism of support for affected individuals and families. There is nothing better than meeting individuals who have suffered as we have, and this is but one of the amazing things a gathering in this community can provide.

Please consider attending one of our events (or hosting one of your own), especially if you are feeling as though no one around you understands what you are going through. Because, if nothing else, we understand.

Missed a webinar? Past webinars are now available in video form.


Do you

have a

child with

PXE?

Pediatric study now recruiting!

Qualifications: 

18 years and younger, and have PXE

Participation: 
Complete survey, Donate DNA via cheek swab


Email Abbie Moore or call 202.362.9599, ext 252

Magnesium supplement clinical trial has begun!

Check on the progress

 



 

2012 Research Meeting
 

2012 PXE Health Challenge

Keep your healthy choices going in 2013!

Agenda Setting
2010 PXE Research Meeting

Summary article published in the AJMG

 

Last modified: 05/16/2013