Events
PXE International is extremely committed to patient and physician education and communication. We do this through our various events such as webinars, regional meetings, and biennial conferences. While these take a lot of time and money to prepare, PXE International believes them to be a vital part of our mechanism of support for affected individuals and families. There is nothing better than meeting individuals who have suffered as we have, and this is but one of the amazing things a gathering in this community can provide.
Please consider attending one of our events (or hosting one of your own), especially if you are feeling as though no one around you understands what you are going through. Because, if nothing else, we understand.
Read about our 2010 agenda setting research meeting: 2010 PXE Research Conference
Read the summary article published in the American Journal of Medical Genetics: “Pseudoxanthoma Elasticum: Progress in Diagnostics and Research Towards Treatment Summary of the 2010 PXE International Research Meeting.”
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Webinar: 2012 PXE Research Update |
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2012 PXE International Biennial Conference September 21-23, 2012 |
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New video challenges every month!
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Missed a webinar? Past webinars are now available in video form!




