Events
PXE International is extremely committed to patient and physician education and communication. We do this through our various events such as webinars, regional meetings, and biennial conferences. While these take a lot of time and money to prepare, PXE International believes them to be a vital part of our mechanism of support for affected individuals and families. There is nothing better than meeting individuals who have suffered as we have, and this is but one of the amazing things a gathering in this community can provide.
Please consider attending one of our events (or hosting one of your own), especially if you are feeling as though no one around you understands what you are going through. Because, if nothing else, we understand.
Missed a webinar? Past webinars are now available in video form.
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Do you have a child with PXE? |
Pediatric study now recruiting! |
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Magnesium supplement clinical trial has begun! |
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2012 Research Meeting |
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Keep your healthy choices going in 2013! |
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Agenda Setting 2010 PXE Research Meeting Summary article published in the AJMG |






