Info For Health Professionals

PXE International strives to educate as many healthcare professionals as possible. Often the only way to do this is for patients themselves to provide our bulletins to their doctors and direct them to our website. Our bulletins are provided on our website, as downloadable PDFs, or you may request paper ones as well.

PXE Medical Bulletins are authored by PXE International's Professional Advisory Board.  PXE International welcomes questions and contact from general practitioners or medical specialists who would like more technical information regarding PXE.  Please email us at info@pxe.org, or call the PXE International office at 202.362.9599.

PXE International maintains a Blood and Tissue Bank and an international registry. Please encourage affected individuals to register with us.