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International Support Group Offices


ARGENTINA
Patricia S. Della Giovanna, MD
Italia 1151, San Miguel
Buenos Aires 1663, Argentina

AUSTRALIA
Fred Zuiderduyn (Welcome)
8 Cook Street
Darlington WA 6070, Australia
Phone: 61.8.92996043
zuiderduyn@linet.net.au

Sally Growden (Welcome)
PXEWA Newsletter (December 2009)
Meeting Report (July 2009)
188 Growden Road
Kondinin WA 6367, Australia
pxewa@bigpond.com

Katrina Vuori
PO Box 3269
Gold Coast
Burleigh Town QLD 4220, Australia
Phone (M): 0402.537.145
anirtak@powerup.com.au

CANADA
Samantha Goldman (Welcome)

290 Dawlish Ave.
Toronto, M4N1J5, Canada
Phone: 416.483.9816
sgoldman@sympatico.ca

Judy Osborne (Welcome) 
1239 Huntington Circle
Peterborough, Ontario K9K 2B5, Canada
Phone: 705.742.9396
posborne@nexicom.net

COLOMBIA
Guillermo Aristizabal, MD
Calle 15 NO. 40 -11
Bogotá 6, Colombia
Phone: +57(1) 3681769/5499
garisti@californialabs.com.co

FRANCE
PXE France

Karine Unger (Welcome)
13, Rue du 8 mai 1944
35170 Bruz, France
Phone: (00 33) 954 41 44 62
www.pxefrance.org
pxefrance@free.fr
kunger@free.fr

GERMANY
Janina Jannert
Selbsthilfegruppe fuer PXE
Geschaftsfuhrerin
Bismarckweg 30
57258 Freudenberg, Germany
Phone: 0049 (0) 2734 4957911 (Bei abwesenheit ist ein anrufbeantworter geschaltet)
Fax: 0049 (0) 2734 4957910
info-pxe@t-online.de

Peter Hof
Grunder und Ehrenvorsitzender der SHG
Selbsthilfegruppe fuer PXE
Erkrankte Deutschlands 1999 e.V.
Bismarckweg 21
57258 Freudenberg, Germany
Phone: 0049 (0) 2734 20856
Fax: 0049 (0) 2734 437823
hofpxe@t-online.de
www.pxe-groenblad.de

Rudolf Horn, MD
Augenarzt
Marktstr. 19
D.77933 Lahr, Germany
Phone: +49.7821.26081

HUNGARY
András Seres, MD
Budapest Retina Associates
Karpat utca 62-64
1133 Budapest, Hungary
Phone: (+36) 1 889 5819
Fax: (+36) 1 889 5819
https://sites.google.com/site/budapestretinaeng/

ITALY
PXE ITALIA

Valeria Azzaroni
Via Ferriera, 17
40133 Bologna, Italy
Phone: 051.383285
Phone: 0534.44288
pxeitalia@libero.it
www.pxeitalia.unimo.it

THE NETHERLANDS
Yvonne Rijpstra (Welcome)
Secretariaat Contactgroep PXE
Phone: 030-6959838
yhm.rijpstra@tele2.nl
info@pxe.nl
www.pxe.nl

PORTUGAL
Marta Jacinto
PXE Portugal
Rua Marques da Silva, 59 - 2° ESQ
1170-222 Lisboa, Portugal
http://www.pxeportugal.org/
martajacinto@gmail.com
geral@pxeportugal.org

ROMANIA
Denise Bobes (Welcome)
str. Pastorilor nr. 25
jud . Mures
3050 Sighisoara, Romania
Phone: 004.722.538850

SOUTH AFRICA
Nurse Anna-Susan Marais (Welcome)
PXE International, Inc.
P.O. Box 38752
ZA 7430 Pinelands
Cape Town, South Africa
Home Phone: 021.531.2824
Mobile Phone: 082.377.6890
Fax: 021.531.6890
asmarais@pxe.org
International Contact Information:
Home: +27.21.531.2824
Mobile: +27.82.377.6890

Judy Williams (Welcome)
1 Coronation Gardens
73 Coronation Road
Malvern Queensburgh
4093 Kwa Zulu Natal, South Africa
Phone: 031.4647251
judelan@telkomsa.net

Hester Snyman
P.O. Box 467
ZA 7200 Hermanus, South Africa
Phone: 028.316.1016

SWITZERLAND
Richard Timsit
SIC STI
EPFL Lausanne
CH 1015 Ecublens, Switzerland
Phone: 021.693.22.35
Richard.Timsit@epfl.ch

TURKEY
Celalettin Celebi, MD
Mithatpasa Cad. 16/II
Yenisehir Ankara 06420, Turkey
Phone: 90.312.433.17.17

UNITED KINGDOM
Elspeth Lax
15 Mead Close
Marlow, Bucks SL7 1HR, UK
Phone: +44 1628 476687
pxeeurope@aol.com
http://www.pxe.org.uk

VENEZUELA
Alexandra Navarrete Barboza (Welcome)
Urbanizabion La Estrella
Av. 12 #66-43
VE 4002 Maracaibo, Venezuela
Phone: 58.061.985396
pxevzla@hotmail.com

 

Last modified: 03/22/2014