People

Growing from a set of dedicated parents, PXE International now consists of many people equally enthusiastic about the advancement of research and patient support. From full time employees to volunteers, it is clear that there is something about the PXE community that inspires and motivates those who have the opportunity to serve this ever expanding family.

PXE is a very rare disease and the organization is small, but there is not a more active or passionate group to be found. Patients with this condition often joke that there is another symptom: friendliness. Generous and eager, this group of affected individuals and their families never stop asking the right questions, educating their healthcare providers, and supporting each other through good times and bad.

Whether you yourself have PXE, have a family member or friend who is affected or work on the disease in research or patient support, you know this to be true. Staff, board, volunteers, and PXEers around the world live each day to ease the struggle of those around them. That is what makes this community, this family, so special.

Thank you, everyone.
 

"Different is beautiful - The faces of PXE"
PXE International's 2008 Biennial Conference Photos by Rick Guidotti of Positive Exposure

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