PXE Vision: By and For PXEers


By Pat Manson


 

Pat Manson, affected by pseudoxanthoma elasticum [PXE], writes a periodic column about the issues faced by those with this condition.

 

The HELP Survey: Help for All PXEers (July 2015)
Researchers have told us that PXE causes PXEers to have deposits of minerals throughout the body. They've also told us that the problems caused by those deposits are limited to those with which we're familiar: skin, eyes, the GI and the cardiovascular systems. But there've been lingering doubts that there may be other issues caused by PXE. Now, PXE International's HELP Survey is intended to answer those doubts by exploring the personal and family history of many PXEers.