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Do you have a child with PXE?
We need you for a research study!
Email Abbie Moore, Research Director


PXE International provides access to relevant, instructional, personal and just plain fun news in a variety of formats--print, email, website--for the benefit of the PXE community.


eNewsletters
Stay informed! Our monthly emailed newsletter keeps you up to date on the latest happenings in research and at PXE International.

MemberGram Newsletter
The MemberGram newsletter is a biannual print publication of PXE International. In this section you will find the latest issue available for download, or you can browse through past issues, or you can find past MemberGram articles by specific topics of interest such as vision, research, genetics and personal stories.
 

Harper's Corner
Join Jessica Harper for a chuckle and a change of pace.
PXE Vision: By and For PXEers
With a no-nonsense approach, Pat Manson addresses tough issues that many PXEers face.


News Articles
Here you'll find articles about pseudoxanthoma elasticum and the men, women and children whose lives are affected by it.

E-mail Listservs
Find out what's going on in the world of PXE.  As a registered member of PXE International, you are automatically subscribed to our one-way PXE Announcements listserv when you provide an e-mail address. Subscription to the PXE Medical listserv or the PXE Chat listserv is optional.

 

 

Last modified: 02/05/2013