Vision

Medical Bulletins and Eye FAQs

Medical bulletins in simple terms describing the effects of pseudoxanthoma elasticum on the eye.

PXE and the Eye, for the patient
Angioid Streaks and PXE, for the health professional

PXE International's Professional Advisory Board answers your questions in the following FAQs:

Bleeding and Vision Loss
Eye Treatments and Procedures
Restrictions to Activities
Other Eye Questions

Treatments for Retinal Bleeding Caused by PXE

Lay summaries of important research.

October 2012: Avastin and Lucentis Are Equivalent in Treating AMD: CATT Two-year Results
November 2011: Monthly Lucentis - Safe and Effective for PXE?
May 2011: Lucentis and Avastin Equally Effective for AMD
May 2010: Retinal Treatments
May 2010: UK's NHS Looking into Avastin® As Treatment for Wet AMD
August 2009: Update on Treatments for Retinal Bleeding Caused by PXE
August 2008: Clinical Trials Comparing Avastin and Lucentis
October 2007: Finally! Analysis of the Use of Avastin for Retinal Bleeding of PXE
Summer 2006: Treatments for Retinal Bleeding Caused by PXE

Amsler Grid Vision Check

Test the vision in each eye every day. Early detection of a vision problem increases the chance of saving eyesight through timely treatment. The Amsler Grid is a simple test of vision quality that detects even minor changes when they first occur. This easy test only takes a moment for each eye. If you notice any changes in the appearance of the grid such as distortion, blurring, discoloration, dark or missing areas of the grid, or any other changes, call and visit your retinologist immediately! Do not wait to see if the changes will clear up with no intervention. Amsler Grid Vision Check.

Webinars and Video

What to Expect from a Low Vision Session
What to Expect
from a Low Vision Session

Presenter Wendy Mons, 9/2011

PXE and the Eye, presenter Wai Wong, MD, 5/2009

Personal Stories

One Woman's Journey, by JoAnn DeFrancesco
Two Paths, by Pat Manson
A PXEer's Success Story, by Pat Manson
Embrace the Change, by Jan Nesset
Arizona Department of Economic Security: A Resource for Low Vision Tools, by Charles Harper
Give Sorrow Words, by Charles Harper
What I Miss Most (about not seeing), by Pat Manson