Vision

Medical Bulletins and Eye FAQs

Medical bulletins in simple terms describing the effects of pseudoxanthoma elasticum on the eye.

• PXE and the Eye, for the patient
• Angioid Streaks and PXE, for the health professional

PXE International's Professional Advisory Board answers your questions in the following FAQs:

• Bleeding and Vision Loss
• Eye Treatments and Procedures
• Restrictions to Activities
• Other Eye Questions
   

Treatments for Retinal Bleeding Caused by PXE

Lay summaries of important research.

• Monthly Lucentis - Safe and Effective for PXE? [November 2011]
• Lucentis and Avastin Equally Effective for AMD [May 2011]
• Retinal Treatments [May 2010]
• UK's NHS Looking into Avastin® As Treatment for Wet AMD [May 11, 2010]
• Update on Treatments for Retinal Bleeding Caused by PXE [August 2009]
• Clinical Trials Comparing Avastin and Lucentis [August 2008]
• Finally! Analysis of the Use of Avastin for Retinal Bleeding of PXE [October 2007]
• Treatments for Retinal Bleeding Caused by PXE [Summer 2006]
   

Amsler Grid Vision Check

Test the vision in each eye every day.  Early detection of a vision problem increases the chance of saving eyesight through timely treatment.  The Amsler Grid is a simple test of vision quality that detects even minor changes when they first occur.  This easy test only takes a moment for each eye.  If you notice any changes in the appearance of the grid such as distortion, blurring, discoloration, dark or missing areas of the grid, or any other changes, call and visit your retinologist immediately!  Do not wait to see if the changes will clear up with no intervention. Amsler Grid Vision Check.
 

Webinars and Video

• What to Expect from a Low Vision Session, presenter Wendy Mons, 9/2011
• PXE and the Eye, presenter Wai Wong, MD, 5/2009
• Low Vision Session, presenter Wendy Mons, 10/2008
   

Personal Stories

• One Woman's Journey, by JoAnn DeFrancesco
• Two Paths, by Pat Manson
• A PXEer's Success Story, by Pat Manson
• Embrace the Change, by Jan Nesset
• Arizona Department of Economic Security: A Resource for Low Vision Tools, by Charles Harper
• Give Sorrow Words, by Charles Harper
• What I Miss Most (about not seeing), by Pat Manson
   

Vision Links