Do you wish that more doctors knew what pseudoxanthoma elasticum was all about? Be sure to educate yours! Print the medical bulletin "PXE and the Primary Care Physician", and hand it to every doctor you have.
PXE is a systemic disorder that affects the skin, eyes, and vascular systems. It may also affect other organs. Some symptoms have effective treatments. This is your one stop shop for credible, quality, up-to-date information on PXE.
The purpose of the PXE HELP survey (Health Engagement and Lifestyle Program) is to learn more about the characteristics of the population affected by PXE (epidemiology) and the natural history of the disease. We also aim to understand how living with the condition affects one's life.