More about the PXE HELP Survey

We need you! You need you! Your experience of living with pseudoxanthoma elasticum (PXE) is critical to understanding how PXE progresses, and what might slow it down or stop it. Please answer the PXE survey today! If you have already replied, feel free to sign back in and update your answers, or answer more questions!

What is Pseudoxanthoma Elasticum (PXE)?

PXE is a systemic disorder that affects the skin, eyes, and vascular systems. It may also affect other organs. Some symptoms have effective treatments. This is your one stop shop for credible, quality, up-to-date information on PXE.

Celebrate at the 20th Anniversary Conference with us!

It’s our 20th anniversary! We will gather October 16 – 18, 2015 in the metro DC area for a major meeting. Come network with others, help define the PXE research agenda, and learn the state of the art thinking about PXE. Learn about angioid streaks, PXE and intermittent claudication, and more. Register for the 20th Anniversary Conference.