Surveys submitted so far toward the goal of 4,300!





Welcome to PXE International’s home page. PXE International has  launched a new online survey, in order to be ready for clinical trials of a PXE treatment that may be ready in the next few years! The survey is called PXE HELP (Health Engagement and Lifestyle Program), and we need everyone with pseudoxanthoma elasticum (PXE) to tell us about their PXE, so that we have a complete picture of PXE. To start the survey, click the orange ’Start’ button. If you have question or trouble with any part of the survey, please contact


PXE HELP Survey Demo #1: Logging into your survey for the first time
PXE HELP Survey Demo #2: Logging back into your survey to check or change your answers