Do you wish that more doctors knew what pseudoxanthoma elasticum was all about? Looking for more information for yourself and your loved ones? Read through these informational bulletins to learn more about Pseudoxanthoma Elasticum (PXE).
PXE is a systemic disorder that affects the skin, eyes, and vascular systems. It may also affect other organs. Some symptoms have effective treatments. This is your one stop shop for credible, quality, up-to-date information on PXE.
The purpose of the PXE & LIFE survey is to learn more about the characteristics of the population affected by PXE (epidemiology) and the natural history of the disease. We also aim to understand how living with the condition affects one's life.