Frequently Asked Questions

Individuals affected by PXE have asked many questions over the years on the PXE chat list about living with PXE. These questions have been answered by the PXE Professional Advisory Board and are compiled here for your information.


Most of these FAQs are replies to general and specific questions which have been submitted to us in the past. Our responses may not apply to any particular individual´s situation and are not a substitute for medical advice given by a physician who is familiar with the individual´s case and who has examined the patient. In addition, the responses are updated on a periodic basis but may not be current.