Vision and Mission


PXE International

  •  initiates, funds and conducts research;
  •  provides support for individuals and families affected by pseudoxanthoma elasticum;
  •  provides resources for healthcare professionals.



PXE International was founded in 1995 to promote research and support individuals affected by pseudoxanthoma elasticum (PXE). We work on behalf of individuals and their families to improve quality of life through advancing research, educating clinicians and supporting individuals.

PXE International is the prime force in conducting basic and clinical research and providing financial support for applied translational research, product development, and treatment development for Pseudoxanthoma Elasticum(PXE). We steward the intellectual property to equitably advance products and services around the world for the individuals and families living with PXE.

Advocacy Groups as Research Organizations: The PXE International Example

To discover more about the origins of PXE International, read Sharon Terry's Health Affairs article, Learning Genetics.

PXE International is a 501(c)(3) not-for-profit organization established in 1995. PXE International research began its funding through private donations. The seeds planted by these small donations have grown into grants from foundations, companies and the government. The success of our activities and our mission as a whole depends on the generosity of you, our supporters.  You can make a tax-deductible donation at any time.

PXE International Board Members

Patrick F. Terry
PXE International
Washington, DC

Lionel G. Bercovitch, MD
Scientific and Medical Director
Brown University
Providence, RI

Joe Maas, PharmD
J.T.M. Provisions
Harrison, OH

Jessica Harper
Los Angeles, CA

Kathy Hersey
Waccabuc, NY

Judy Williams
Malvern, Queensburgh, South Africa

Ex Officio -
Sharon Terry

Chief Executive Officer
PXE International
Washington, DC