What is PXE: Where can my doctor or I get more information?

PXE International publishes informational bulletins for affected individuals and for physicians, including separate bulletins about PXE's effects on the eyes and the skin, during pregnancy, in children, and for pediatricians and dentists. PXE International publishes a newsletter in which current research projects and findings are announced and news is shared about local support groups of PXE International. These are all available by mail or online at the PXE International website. PXE International manages a blood and tissue bank, which is vital for research on PXE. In addition, PXE International initiates and funds research projects.

If this information was helpful to you, please consider making a quick donation today because every penny counts. 100% of donations go to support and research.