PXE International is the prime force in conducting basic and clinical research and providing financial support for research on pseudoxanthoma elasticum (PXE) - $2.3 million over the past 24 years! We have worked on applied translational research, product development, and treatment development for Pseudoxanthoma Elasticum (PXE). We steward the intellectual property to equitably advance products and services around the world for the individuals and families living with PXE.
We have a lot going on in PXE research. Years ago we had to beat the bushes to find anyone interested in PXE research. Now we have the interest and can not keep up with the demand. These researchers need support. And so PXE International funds many of them, and also helps them get grants from other entities, like the National Institutes of Health. So you can life your life to the fullest and know there is a team trying to take care of you and your loved ones!
The PXE International Center of Excellence in Research and Clinical Care
PXE International opened the PXE International Center of Excellence in Research and Clinical Care at Jefferson Medical College in Philadelphia, Pennsylvania, USA, in 2016. The Center was launched at the beginning of the 2016 PXE International Biennial Research Symposium: “Progress in Diagnostics, Research and Treatment” on September 15, 2016.
The Center provides a locus for pseudoxanthoma elasticum (PXE) research and clinical care. PXE International, with Jefferson Medical College, supports the Center and its first lead scientist, Koen van de Wetering, who has been recruited from The Netherlands. Dr. v.d. Wetering has been instrumental in a number of important basic science and preclinical discoveries for PXE, most notably the discovery of the importance of pyrophosphate in PXE.
Research around the World
For fairly in depth look at the research we fund all over the world, take a look at the various webinars we produced this spring: - https://www.youtube.com/user/PXEInter.