15th Anniversary Challenge

We have seen 15 years of incredible successes, including our biological sample repository, clinical registry, genetic test, mouse model, cell studies, many natural history studies and even clinical studies. Your support, and PXE International´s organization of the research on pseudoxanthoma elasticum (PXE), has been phenomenal.

But – should we rest on our laurels? NO! The time is NOW to move forward on this wonderful platform we have built. We have an enormous opportunity in front of us. There is a wonderful convergence of excellent advances in medical research and our understanding of PXE.

PXE International is always bold. We take risks that result in great benefits. Therefore, we are announcing our next and most daring goal so far. We will raise $1,500,000 over the next 5 years.

Our last challenge was the Race for Research from 2006 to 2010. Due to your generosity, we raised $250,000! All of the money raised was used to fund critical studies in the US, Italy, Hungary and elsewhere. It is these studies that have us poised to move into treatment discovery and development for PXE. And these funds leveraged other funding in the US and Europe from government agencies.

In November of this 2010, scientists from all over the world came together to report research results and to collaborate on a comprehensive plan for research for the next 5 years. We commit to assuring these scientists that we will find the funding for the plan they create.

For this we need your help. We need you to make a commitment, a pledge, to support this bold plan. You can give us whatever you can afford – small or large – all at once or via a periodic donation. We cannot thank you enough in words for your contribution – but we can thank you with the commitment that we will take every dollar and grow it, and it will catapult PXE research into the stratosphere!

To see what PXE International spends its time and energy on, read our 2011 Annual Report!