2009 eNewsletters

Published bimonthly, our eNewsletters keep you up to date on the latest happenings at PXE International. If you would like to receive the eNewsletter, please register with PXE International.

• December 2009
• November 2009
  
• August 2009
  
• May 2009
• February 2009

December 2009

• 2009 Honor Roll of Donors
• Symposium on PXE (2009) - Budapest, Hungary
• January 2010 Webinar - Own Your PXE
• Harper's Corner - The Talking Scale
• GINA Title 1 Reguations in Effect
• The FAQ's about Genetic Counseling
• Rockbrokers Donates $9,000!
• Pat Terry is Man of the Month
• What to get those PXEers on your list

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November 2009

• PXE receives $100.000 Grant from Helmsley Charitable Trust
• Do Other Genes Influence the Severity of PXE?
• Embrace the Change
• Celebrate PXE International's 15 year anniversary
• Combined Federal Campaign of the National Capital Area

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August 2009

• Updates on Treatments for Retinal Bleeding Caused by PXE
• Harper's Corner - Men, Gas, and Measuring Cups
• Arizona Department of Economic Security: A Resource for Low Vision Tools
• A Word from the Board: Claire Driscoll and Judy Williams
• PXE Meeting Reports
• September 2010 Webinar - Do Mice Have PXE, and Why Study Them?
• Grocery Savings - an easy fundraising idea

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May 2009

• New Research Section on Website
• Call for Avastin, Lucentis, or Macugen Medical Records
• A Word From The Board - Joe Maas
• July 2010 Webinar - Presentation and Progression of PXE in Children
• Pennies for PXE

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February 2009

• Dietary Magnesium Prevented Tissue Mineralization in the PXE Mouse
• The FAQ's about Calcium
• Harper's Corner - Elephant in my Room
• Portal to NIH Information on PXE
• Connie Culhane Hired as Webmaster
• Two-part Webinar March & April - General Overivew of PXE
• Regional Meeting Reports
• Elizabeth Terry uses FirstGiving to raise $2,000 for PXE International
• Annual Appeal

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