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PXE International Blood and Tissue Bank

PXE International BioBank and Clinical Data Registry

With samples and clinical data numbering in the thousands, the PXE International Biobank is by far the largest collection for pseudoxanthoma elasticum (PXE) in the world.  An easy application process allows researchers from all over the world access to these resources.  And hundreds of research projects have used them.

Learn more about the PXE International BioBank and Clinical Data Registry

Learn more about the Genetic Alliance Registry and BioBank

Blood and Tissue Bank

PXE International, Inc. holds the world´s largest collection of blood and tissue from people affected by PXE and their families. It is the only centralized repository for PXE samples in the world. We are using these samples for genetic research – examining the many mutations, the effect of the mutations on the cell and the future of possible interventions. PXE International established the PXE International Blood and Tissue Bank to make certain that your privacy and confidentiality are protected and your samples are available to any approved research project. Typically, most labs do not share this precious resource with other researchers; therefore, we have been able to create a novel and powerful tool for advancing PXE research.

Researchers interested in either donating PXE DNA, tissue and cell lines or in applying to use material from the bank should call 202.362.9599 or email Sharon Terry.



Last modified: 03/22/2014