More About PXE
Find listings of medical journal articles on PXE, thorough clinical descriptions of PXE for the health care provider, and much more in PubMed, NCBI and GeneReviews.
Vision
Find many resources for low vision services, descriptions of current treatments for wet AMD, state low vision driving regulations and more.
Skin
Browse the sites for the American Academy of Dermatology and Journal Watch Dermatology.
Genetic Testing
Understand the genetic testing process, and locate genetic counseling services.
Clinical Trials
Find out how clinical trials work, the risks and benefits, how and why to participate in them, terms related to them, an interactive tutorial, research and journal articles, and many other resources.
Disability and Patient Resources
Browse sites created for those with disabilities, particularly the Patient Advocate Foundation, and excellent resource. Read up on the Family and Medical Leave Act.
General Healthcare
Browse through several websites covering a wide variety of health topics, including the Genetic Alliance website.
Products - Proceeds to Support PXE International
Support these organizations! They support PXE International!