• PXE and the Eye, for the patient
• Angioid Streaks and PXE, for the health professional

PXE International's Professional Advisory Board answers your questions in the following FAQs:

• Bleeding and Vision Loss
• Eye Treatments and Procedures
• Restrictions to Activities
• Other Eye Questions

Retinal Bleeding Caused by PXE
Lay summaries of important research.

• Retinal Treatments [May 2010]
• Update on Treatments for Retinal Bleeding Caused by PXE [August 2009]
• A Possible Drug Alternative to Avastin and Lucentis [December 2008]
• Clinical Trials Comparing Avastin and Lucentis [August 2008]
• Finally! Analysis of the Use of Avastin for Retinal Bleeding of PXE [October 2007]
• Treatments for Retinal Bleeding Caused by PXE [Summer 2006]

Amsler Grid Vision Check
Test the vision in each eye every day.  Early detection of a vision problem increases the chance of saving eyesight through timely treatment.  The Amsler Grid is a simple test of vision quality that detects even minor changes when they first occur.  This easy test only takes a moment for each eye.  If you notice any changes in the appearance of the grid such as distortion, blurring, discoloration, dark or missing areas of the grid, or any other changes, call and visit your retinologist immediately!  Do not wait to see if the changes will clear up with no intervention.  Amsler Grid Vision Check.

Webinars

• PXE and the Eye, presenter Wayne Fuchs, MD, 9/2008
• Low Vision Session, presenter Wendy Mons, 10/2008
• PXE and the Eye, presenter Wai Wong, MD, 5/2009

Personal Stories
One Woman's Journey, by JoAnn DeFrancesco
Two Paths, by Pat Manson
A PXEer's Success Story, by Pat Manson
Embrace the Change, by Jan Nesset
Arizona Department of Economic Security: A Resource for Low Vision Tools, by Charles Harper
Give Sorrow Words, by Charles Harper
What I Miss Most (about not seeing), by Pat Manson

Vision Links
Vision articles from past MemberGrams