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Get Involved

Do you have a child with PXE?
We need you for a research study!
Email Abbie Moore, Research Director

Finding a treatment for PXE begins with you. There are many ways you can help PXE International, and we appreciate each one of them. Thank you for your support!
 


Help raise $1.5 million in 5 years
for PXE research!
Track progress toward the goal.

Make a Pledge Online or
Download a Pledge Form or
Donate Online
 

Participate in the Epidemiological Etudy 

Donate your clinical information by completing an online survey
 

Shop online using iGive 

Earn money
for PXE International
at the same time!
 

register
Registration is free!  

Connect with other PXEers!
Receive the monthly eNewsletter
 

Put the "Fun" in "Fundraising"!
Here are some ideas
 

DonateB1
Every donation, no matter how small, means so much!
Donate online using PayPal
 


 

Last modified: 04/03/2013