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Get Involved

  "We make a living by what we get, but we make a life by what we give."
- Winston Churchill

Finding a treatment for PXE begins with you. There are many ways you can help PXE International, and we appreciate each one of them. Thank you for your support!

15th Anniversary challenge logo

Amount Pledged as of 11/07/11
$452,745!

PXE International
15th Anniversary Challenge  

$1.5 Million in 5 years!

Help us raise $1.5 million in 5 years
to help find a treatment for
pseudoxanthoma elasticum.  

Donate today using the donation form.
At Donation Purpose select
15th Anniversary Challenge. 


Or make a pledge over the next 5 years. 
We commit to taking every dollar
and growing it so we can catapult
PXE Research into the stratosphere! 

Online Pledge Form

 

register

Registration is free!  We don't share information so
please register with us so you'll have the opportunity
to connect with other PXEers!
 

 

 

There are many ways to donate! A one-time gift, a monthly
donation, stock contribution, clinical information, or even
your car! We are also celebrating 15 years of operation
this year and are holding our 15th Anniversary Challenge!
Trying to raise 1.5 million dollars in 5 years might be bold,
but we’re nothing but daring. Every little bit helps!

Donate Your Clinical Information: Epidemiological Study

PXE International is conducting a new epidemiological study. The purpose of this study is to update old information, gather new information, and use those findings to further PXE Research and our understanding of the condition. We are asking PXEers worldwide to be a part of this study by filling out an online survey.

 

Fundraising

Raising money can be daunting when first thought about, but really it can be very rewarding and even fun! Have connections with a golf course? Hold a charity tournament! Are you a wine connoisseur? Hold a wine tasting! You can even organize your school to hold a bake sale! No amount of money or effort is too small. There are many ways to raise money by doing what you love. If you would like to hold a fundraiser for PXE, we would be so glad to help you with any support you need. Don’t have specific ideas but want to be involved in fundraising? Send us an email at info@pxe.org describing your interests and we’ll get back to you with ideas and opportunities! We would be so incredibly grateful. 

 

       

 

 

 

 

 

 

Last modified: 01/12/2012