PXE Vision: By and For PXEers

By Pat Manson

Pat Manson, affected by pseudoxanthoma elasticum [PXE], writes a periodic column about the issues faced by those with this condition.

 

More Books for PXEers (March 2013)
A couple of years ago, PXEer Pat Manson, with the help of his friends and family, the internet and his memory, compiled a long list of books that they felt may help fight depression. These are books that lift the reader’s spirits by being funny or clever, by having a not-too-sappy happy ending or by inspiring the reader. Last June, Pat selected 7 books from that list for his eNewletter article “Books for PXEers.” In his new piece, the creatively titled “More Books for PXEers,” he returns to that list to review 10 books he finds inspiring: stories of people who had to overcome long odds to complete remarkable feats of engineering, to heal and return to good health, to escape poverty, the Nazis or starvation, to survive or to win.  
 

• My First Ten Years  (August 2012)
• Books for PXEers  (June 2012)
• A Note to New PXEers  (October 2011)
• Top 10 PXE Myths  (August 2010)
• A Funny Thing Happened on the Way to the Retinologist  (June 2009)
• A PXEer's Success Story  (October 2008)
• Two Paths  (December 2007)
• Own Your Disease  (October 2007)
• What We Want—and Need: Gifts for PXEers  (December 2006)
• Are You Disabled?  (June 2006)
• What I Miss Most (about not seeing)  (March 2006)
• Getting Going  (November 2005)
• Discovery  (September 2005)
• Introduction  (May 2005)